Learn more about clinical research and how it is conducted

  • National Institute of Health Research (NIHR) – The Patient and Public Involvement page of the NIHR website has very useful information about clinical research and how people can get involved. The Research changed my life page contains case studies of people talking about their experiences of participating in research in a variety of roles, from researchers to patients. This gives you a better understanding of what clinical research involves and how health professionals, service users and carers can benefit.

  • UK Clinical Research Collaboration - UKCRC has developed two leaflets for patients and the public which provide information on Clinical Trials:

  • A leaflet, Clinical Trials: What they are and what they’re not answers some of the key questions people have about why and how clinical trials are carried out

  • A booklet, Understanding Clinical Trials provides more detailed information about how clinical trials are designed and carried out, and answers questions for those considering taking part. It also provides an information leaflet entitled Your health records save lives which explains how personal health data is used for research purposes and the importance for medical research. The leaflet was designed and written with input from patient groups and GPs.

  • HealthTalkOnline - Contains information on Clinical Trials, including interviews with people talking about their experience of participating in a trial. It also includes accounts from patients who decided not to take part, and those who withdrew from a trial.

  • NHS Choices – Contains information on Clinical Trials and medical research and has an excellent publication on how you can take part in research, including what questions to ask.

The page was last updated on 20 March 2018 by irokkou.

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