Postural Care and Management
Postural management is the use of specialist equipment and exercises advised by your physiotherapist and occupational therapist. The aim is to promote good postural symmetry that aids motor development, as well as provides comfort and minimises the risk of the development of musculoskeletal postural deformities. This is known as a 24 hour approach.
As part of a child’s 24 hour postural management programme they may be provided with one or more of the following pieces of equipment:
- Standing frames
- Postural seating
- Sleep systems
- Walking frames
- Orthotics/splinting (includes hand splints, foot orthosis and lycra)
- Wheelchairs (provided by an external company)
- Simple Stuff Works - sleep systems
- Symmetrikit - sleep systems
- Jenx - standing frames and walking frames
- Stabilo - posture cushions
- 'Why Stand?' Leckey Poster - the importance of standing
Annual Review Clinic
This clinic is designed to review every child on an annual basis. It is run jointly between a physiotherapist and occupational therapist (when appropriate). Within this clinic a number of physical assessments will be completed to allow us to create a comprehensive therapy report for parents, including relevant therapy goals. The clinic is at the Child Development Centre and so parents/carers are expected to attend.
What to bring:
- Any current orthosis
- Mobility aids
- Suitable clothing for physical assessment e.g. loose fitting clothes or shorts and t-shirt
- Parents to prepare discussion points they would like addressing
Tone Management Clinic
This clinic is run jointly by a Paediatrician specialising in neuro-disability, Physiotherapist and Occupational Therapist. The aim of the clinic is to do a joint assessment for discussing different ways to manage abnormal tone to enhance function. This could be through medications, botox or through appropriate orthotics.
This clinic is run in conjunction with an external orthotics company. A child will be seen in clinic by an orthotist and physiotherapist. This joint approach allows us to provide the best orthosis to fit the child/young person's functional needs. The child/young person will be referred into this clinic by their physiotherapist.
The clinic runs every 2 weeks on a Friday from 9am-4pm.
What to bring:
- Any current orthosis
- Mobility aids if used
- Suitable clothing (shorts where possible)
If clinically indicated we may provide:
- Custom insoles
- Shoe raises
- Rocker soles
- Night/resting splints
- Off the shelf orthosis
This clinic is run on a 3-4 monthly basis and is designed to review children with a confirmed neuromuscular diagnosis. It is a joint clinic with the consultant paediatrician, neuromuscular advisor and physiotherapist. Within this clinic the child/young person's progress and management will be reviewed, relevant assessments completed and allows parents an opportunity to discuss any concerns.
For children to lead a healthy lifestyle they need to move as much as possible. It is recommended that children are active for at least 60 minutes per day to help keep their hearts healthy and bones strong- and if they have additional needs, this is just as important.
There are several inclusive sports clubs and activities that are available in the local and surrounding areas of Peterborough. Please see the links below to some of these:
Vivacity – Vivacity offer a wide range of inclusive activities in Peterborough such as adaptive cycling, boccia and sensory swim lessons. You can sign up to these sessions through their website.
- Gymnastics & Trampolining
- Sailing - Peterborough Sailability
- Horse Riding - Riding for the Disabled Association (New Pasture Riding School, Thorney)
- Horse Riding - (Lynch Farm, Orton)
- Safari Play - Soft Play
- Inflatanation - Disability Friendly Sessions
- British Blind Sport
- Cerebral Palsy Sport UK – Frame Running
- Sense UK – A range of virtual activities
- Family Voice Peterborough
- Contact Charity
- Peterborough City Council
- Royal College of Paediatrics and Child Health
- NHS Choices
- Down's Syndrome Association
- National Autistic Society
- Association of Paediatric Chartered Physiotherapists Parent Leaflets
- Rainbow Trust - Supporting Families with a Seriously Ill Child
- Head to Toe Charity
- East Anglia's Children's Hospice
Other useful contact details
Contact details for AJM Healthcare Wheelchair Services
T: 0808 169 9633
E (general enquiries): firstname.lastname@example.org
Contact details for NRS Healthcare
T: 0345 121 3456
Wheelchair Funding Information
As a patient, relative or carer using our services, sometimes you may need to turn to someone for help, advice, and support.