How our service can help you
ME/CFS is a debilitating, chronic multi-system illness. Although a definitive cause for the condition is still unknown, current research suggests that the autonomic nervous system, neuroendocrine system, and the immune system are the body systems likely to be involved in the condition that is ME/CFS.
Symptoms include debilitating fatigue, post exertional malaise, sleep disturbances and cognitive dysfunction such as issues with memory and concentration and word finding difficulties. There are also other symptoms that are commonly experienced by people living with ME/CFS. The pattern and intensity of symptoms vary from person to person and symptoms are unpredictable in their nature.
Referrals are triaged by specialist clinicians in the service and if appropriate, patients are invited to attend an initial assessment with a specialist clinician. At the appointment, patients are assessed, and confirmation of diagnosis is made based on the preliminary diagnosis from the referring GP.
Information and advice for self-management of the condition is person-centred delivered through education sessions, therapy intervention and self-help literature. Areas covered (amongst others) include education regarding symptomology of ME/CFS, understanding energy, activity management, relaxation, sleep, stress, and emotional wellbeing.
Clinical and therapy appointments are offered virtually (via video link or telephone). Face to face appointments can be offered if this is preferred at clinics in Peterborough (Botolph Bridge Community Health Centre), Huntingdon (Hinchingbrooke Hospital) and Cambridge (Brookfield Hospital).
The ME/CFS service consists of specialist clinicians who have a wide range of knowledge, skills, and experience in ME/CFS and fatigue management. As well as establishing a supportive and collaborative relationship with the person living with ME/CFS, and their family/carers the service also provides advice, support, and training to other health professionals. The team attends regular training events to update their knowledge, skills, and research within this specialist area and regularly network with other ME/CFS services in the East Midlands region.
What to do in an emergency
The ME/CFS team is not a crisis or emergency service and cannot provide an urgent response. If you have a medical emergency please contact your GP, dial 111 or 999 depending on your emergency and circumstances. If you are in a mental health crisis, contact The First Response Service and The Sanctuary on 111 and select option 2.
Contact the service
2 Phorpres Close
T: 0330 726 0077
- Business Hours/Visiting Hours: Monday to Friday, excluding Bank Holidays: Admin Hub 8am-5pm; Therapy 8.30am-4.30pm
The service accepts referrals for adults who are registered with a GP in Cambridgeshire Integrated Care Board (ICB).
GP booklet BACME-Primary-Care-Guide-to-MECFS.pdf [pdf] 465KB
GPs within the Cambridgeshire ICB can refer adult patients using the referral form below.
ME CFS Referral Form May 2023.docx [docx] 448KB
Please send referrals to firstname.lastname@example.org
Where to park and are there parking charges?
There are a variety of clinic venues which are NHS facilities (hospital and GP surgeries). Some of these charge for parking, others will be free.
Is there access and support for patients and visitors with a disability?
There are a variety of clinic venues which are NHS facilities (hospital and GP surgeries). Generally, there is access for disabilities, although this may not always be the case. Please contact the admin team to discuss on a case-by-case basis.
How to cancel your appointment
Please call the admin team on 0330 726 0077 or send an email to email@example.com to cancel or rearrange your appointment.
Other essential information
- Action for ME: https://www.actionforme.org.uk ME Association: https://www.meassociation.org.uk
A carer is anyone, including children and adults who looks after a family member, partner or friend who needs help because of their illness, frailty, disability, a mental health problem or an addiction and cannot cope without their support. The care they give is unpaid.
At Cambridgeshire and Peterborough NHS Foundation Trust, we value the often life-long support carers provide and recognise them as equal care partners. We want to offer as much guidance and reassurance as possible, to help you in your caring role. You can find general information and support for adult carers, young carers and parent carers by following this link.