Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS)

How our service can help you

Please be aware that the information on this webpage is currently under review in response to new national guidance. We will update in due course. Thank you in advance for your patience. Any queries should be e-mailed directly to cpm-tr.cfsme@nhs.net.

Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) is a complex, debilitating disorder and, as yet, no single cause has been identified. The condition is characterised by extreme fatigue and tiredness that does not go away with rest and cannot be explained by an underlying medical condition.

For a diagnosis of ME/CFS, fatigue and other symptoms need to have persisted for more than four months. The CDC criteria (Centers for Disease Control) used to confirm diagnosis requires a minimum of four of the eight key symptoms to be present - cognitive disturbance, recurrent sore throats, cervical/axillary lymphadenopathy, muscle pain, multi joint pain, new headaches, unrefreshing sleep and post exertional malaise (PEN) rather than post-exertional fatigue. For people experiencing persistent fatigue following an infection such as Covid-19, there is information below about Post-Viral Fatigue and Post-Viral Fatigue Syndrome. 

About our specialist service

The team comprises a neuro-conditions clinical Manager and specialist clinicians/ occupational therapists who specialise in the management of ME/CFS. The team will aim to establish a supportive and collaborative relationship with the person with ME/CFS and their family/carers.

What the specialist service offers

The specialist ME/CFS clinicians in the service have a wide range of skills and experience in the management of ME/CFS. They will support you to self-manage the condition in a way that is appropriate to you, providing you with the necessary skills and strategies to sustain or gradually extend, if possible, your physical, emotional and cognitive capacity and manage the physical and emotional impact of symptoms.

Although the National Institute for Health and Care Excellence (NICE) 2007 guidelines for the management of ME/CFS are under review, there is evidence that activity management, relaxation, improving sleep and diet, exercise/physical activity, managing stress, unhelpful thinking patterns and setbacks can support improvement.

What is occupational therapy?

Occupational therapy is a holistic approach, providing practical support to enable people to facilitate recovery and overcome any barriers that prevent them from doing the activities (occupations) that matter to them. The benefits of occupational therapy are:

  • Improved confidence and ability to self-manage symptoms and daily life
  • Practical advice and solutions
  • Engagement and participation in occupations, activities and tasks which are meaningful and purposeful 
  • Increased awareness of services and support available
  • Returning to work or remaining in employment.

Useful documents

Patients

CPFT COVID-19 Patient Education Pack.pdf [pdf] 986KB
CPFT Information Regarding the MECFS Programme.pdf [pdf] 454KB
CPFT Patient Self Help Booklet.pdf [pdf] 516KB
CPFT Post Viral Fatigue Steps to Recovery Poster.pdf [pdf] 68KB

Covid-19

Practical advice for people during and after having COVID-19 
Practical advice for people treated in hospital
Practical advice for people who have recovered at home 
Post Viral Fatigue and Post Viral Fatigue Syndrome Following Coronavirus Infection 
Post Viral Fatigue A Guide to Management 
Covid 19 Vaccine update 
Your Covid Recovery 

Professionals

CPFT GP Booklet.pdf [pdf] 434KB
CPFT How to refer to CPFT Neighbourhood Team for Patients with Generalised Fatigue.pdf [pdf] 317KB
General Fatigue Management advice.pdf [pdf] 828KB
CPFT Post Viral Fatigue Booklet.pdf [pdf] 421KB
CPFT Post Viral Fatigue Post Viral Fatigue Syndrome and MECFS.pdf [pdf] 273KB

Contact the service

  • ME/CFS Service (administration hub)

    Unit 2

    Phorpres Close

    Cygnet Park

    Hampton

    Peterborough

    PE7 8FZ

    •  

    T: 0330 726 0077

    E: CPM-TR.CFSME@Nhs.net

    •  

    The CFS/ME team is not a crisis or emergency service and cannot provide an urgent response. If you have an emergency please contact your GP, dial 111 or 999 depending on your emergency and circumstances. If you are in a mental health crisis contact the First Response Service on 111 and select option 2.

  • Business Hours/Visiting Hours: Monday-Friday, 8:30am-4:30 pm, excluding Bank Holidays. At present, the service is working remotely offering video or telephone appointments.

Referral Information

Where to park and are there parking charges?

  • There are a variety of clinic venues which are NHS facilities (hospital and GP surgeries). Some of these charge for parking, others will be free.

Is there access and support for patients and visitors with a disability?

  • There are a variety of clinic venues which are NHS facilities (hospital and GP surgeries). Generally there is access for disabilities, although this may not always be the case. Please contact the admin team to discuss on a case-by-case basis.

How to cancel your appointment

  • Please call the admin team on 0330 726 0077 to cancel or rearrange your appointment.

Other essential information

  • Useful Websites: Action for ME: https://www.actionforme.org.uk/ British Association for CFS/ME (BACME) https://www.bacme.info/ The ME Association https://meassociation.org.uk/ Psychological Wellbeing Service - https://www.cpft.nhs.uk/psychological-wellbeing-service/ Insight Healthcare - https://www.insighthealthcare.org/ ACTMindfully - https://www.actmindfully.com.au/ Get Self Help - https://www.getselfhelp.co.uk/ Centre for Clinical Interventions - https://www.cci.health.wa.gov.au/Resources/Looking-After-Yourself

Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS)

How our service can help you

Please be aware that the information on this webpage is currently under review in response to new national guidance. We will update in due course. Thank you in advance for your patience. Any queries should be e-mailed directly to cpm-tr.cfsme@nhs.net.

Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) is a complex, debilitating disorder and, as yet, no single cause has been identified. The condition is characterised by extreme fatigue and tiredness that does not go away with rest and cannot be explained by an underlying medical condition.

For a diagnosis of ME/CFS, fatigue and other symptoms need to have persisted for more than four months. The CDC criteria (Centers for Disease Control) used to confirm diagnosis requires a minimum of four of the eight key symptoms to be present - cognitive disturbance, recurrent sore throats, cervical/axillary lymphadenopathy, muscle pain, multi joint pain, new headaches, unrefreshing sleep and post exertional malaise (PEN) rather than post-exertional fatigue. For people experiencing persistent fatigue following an infection such as Covid-19, there is information below about Post-Viral Fatigue and Post-Viral Fatigue Syndrome. 

About our specialist service

The team comprises a neuro-conditions clinical Manager and specialist clinicians/ occupational therapists who specialise in the management of ME/CFS. The team will aim to establish a supportive and collaborative relationship with the person with ME/CFS and their family/carers.

What the specialist service offers

The specialist ME/CFS clinicians in the service have a wide range of skills and experience in the management of ME/CFS. They will support you to self-manage the condition in a way that is appropriate to you, providing you with the necessary skills and strategies to sustain or gradually extend, if possible, your physical, emotional and cognitive capacity and manage the physical and emotional impact of symptoms.

Although the National Institute for Health and Care Excellence (NICE) 2007 guidelines for the management of ME/CFS are under review, there is evidence that activity management, relaxation, improving sleep and diet, exercise/physical activity, managing stress, unhelpful thinking patterns and setbacks can support improvement.

What is occupational therapy?

Occupational therapy is a holistic approach, providing practical support to enable people to facilitate recovery and overcome any barriers that prevent them from doing the activities (occupations) that matter to them. The benefits of occupational therapy are:

  • Improved confidence and ability to self-manage symptoms and daily life
  • Practical advice and solutions
  • Engagement and participation in occupations, activities and tasks which are meaningful and purposeful 
  • Increased awareness of services and support available
  • Returning to work or remaining in employment.

Useful documents

Patients

CPFT COVID-19 Patient Education Pack.pdf [pdf] 986KB
CPFT Information Regarding the MECFS Programme.pdf [pdf] 454KB
CPFT Patient Self Help Booklet.pdf [pdf] 516KB
CPFT Post Viral Fatigue Steps to Recovery Poster.pdf [pdf] 68KB

Covid-19

Practical advice for people during and after having COVID-19 
Practical advice for people treated in hospital
Practical advice for people who have recovered at home 
Post Viral Fatigue and Post Viral Fatigue Syndrome Following Coronavirus Infection 
Post Viral Fatigue A Guide to Management 
Covid 19 Vaccine update 
Your Covid Recovery 

Professionals

CPFT GP Booklet.pdf [pdf] 434KB
CPFT How to refer to CPFT Neighbourhood Team for Patients with Generalised Fatigue.pdf [pdf] 317KB
General Fatigue Management advice.pdf [pdf] 828KB
CPFT Post Viral Fatigue Booklet.pdf [pdf] 421KB
CPFT Post Viral Fatigue Post Viral Fatigue Syndrome and MECFS.pdf [pdf] 273KB

Contact the service

  • ME/CFS Service (administration hub)

    Unit 2

    Phorpres Close

    Cygnet Park

    Hampton

    Peterborough

    PE7 8FZ

    •  

    T: 0330 726 0077

    E: CPM-TR.CFSME@Nhs.net

    •  

    The CFS/ME team is not a crisis or emergency service and cannot provide an urgent response. If you have an emergency please contact your GP, dial 111 or 999 depending on your emergency and circumstances. If you are in a mental health crisis contact the First Response Service on 111 and select option 2.

  • Business Hours/Visiting Hours: Monday-Friday, 8:30am-4:30 pm, excluding Bank Holidays. At present, the service is working remotely offering video or telephone appointments.

Referral Information

Where to park and are there parking charges?

  • There are a variety of clinic venues which are NHS facilities (hospital and GP surgeries). Some of these charge for parking, others will be free.

Is there access and support for patients and visitors with a disability?

  • There are a variety of clinic venues which are NHS facilities (hospital and GP surgeries). Generally there is access for disabilities, although this may not always be the case. Please contact the admin team to discuss on a case-by-case basis.

How to cancel your appointment

  • Please call the admin team on 0330 726 0077 to cancel or rearrange your appointment.

Other essential information

  • Useful Websites: Action for ME: https://www.actionforme.org.uk/ British Association for CFS/ME (BACME) https://www.bacme.info/ The ME Association https://meassociation.org.uk/ Psychological Wellbeing Service - https://www.cpft.nhs.uk/psychological-wellbeing-service/ Insight Healthcare - https://www.insighthealthcare.org/ ACTMindfully - https://www.actmindfully.com.au/ Get Self Help - https://www.getselfhelp.co.uk/ Centre for Clinical Interventions - https://www.cci.health.wa.gov.au/Resources/Looking-After-Yourself
As a patient

As a patient, relative or carer using our services, sometimes you may need to turn to someone for help, advice, and support. 

Patient Advice and Liaison service  Contact the Trust