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ME/CFS is a debilitating, chronic multi-system illness. Although a definitive cause for the condition is still unknown, current research suggests that the autonomic nervous system, neuroendocrine system, and the immune system are the body systems likely to be involved in the condition that is ME/CFS.

Symptoms include debilitating fatigue, post exertional malaise, sleep disturbances and cognitive dysfunction such as issues with memory and concentration and word finding difficulties. There are also other symptoms that are commonly experienced by people living with ME/CFS. The pattern and intensity of symptoms vary from person to person and symptoms are unpredictable in their nature.

ME/CFS service

Referrals are triaged by specialist clinicians in the service and if appropriate, patients are invited to attend an initial assessment with a specialist clinician. At the appointment, patients are assessed, and confirmation of diagnosis is made based on the preliminary diagnosis from the referring GP.

Information and advice for self-management of the condition is person-centred delivered through education sessions, therapy intervention and self-help literature. Areas covered (amongst others) include education regarding symptomology of ME/CFS, understanding energy, activity management, relaxation, sleep, stress, and emotional wellbeing.

Clinical and therapy appointments are offered virtually (via video link or telephone). Face to face appointments can be offered if this is preferred at clinics in Peterborough (Botolph Bridge Community Health Centre), Huntingdon (Hinchingbrooke Hospital) and Cambridge (Brookfield Hospital).

The team

The ME/CFS service consists of specialist clinicians who have a wide range of knowledge, skills, and experience in ME/CFS and fatigue management. As well as establishing a supportive and collaborative relationship with the person living with ME/CFS, and their family/carers the service also provides advice, support, and training to other health professionals. The team attends regular training events to update their knowledge, skills, and research within this specialist area and regularly network with other ME/CFS services in the East Midlands region.

What to do in an emergency

The ME/CFS team is not a crisis or emergency service and cannot provide an urgent response. If you have a medical emergency please contact your GP, dial 111 or 999 depending on your emergency and circumstances. If you are in a mental health crisis, contact The First Response Service and The Sanctuary on 111 and select option 2.